The door opens

the shadows creep

with the visceral smell

of sores

of a battle loss

with every brush of touch

with every grip of a pencil

with every step and breath.

Wrapped to protect,

to hide from the world

which stares and pitys

and looks away

and holds their nose

and doesn’t dare

wonder what

fragile marvel

lies under the

bandaged layers.

Under, which

lives deep freedom

that resonates a song

of beautiful




This is in honor of Epidermolysis Bullosa Awareness Week this week and the families who have taught this young doctor and made her aware.


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